Hope Multiple System Atrophy (Hope MSA, USA)

At HOPE MSA, we transform hope into progress. As a vital member of the world’s only global MSA research consortium, we join with others to bring together allies, scientists, and communities across borders to accelerate research, expand opportunity, and move closer to a cure for all.

Email: info@hopemsa.org

Defeat MSA Alliance, Defeat Multiple System Atrophy Alliance (USA)

Defeat MSA Alliance Defeat Multiple System Atrophy Alliance is a volunteer-driven, US-based 501(c)(3) charity committed to transforming the landscape of Multiple System Atrophy (MSA). Recognizing the often-overlooked nature of this devastating disease, we strive to build a world where every person with MSA receives unwavering support, access to cutting-edge research, and compassionate care. We vow to uphold Integrity, conducting our activities with the highest ethical standards, ensuring organizational integrity and financial transparency.

Email: info@defeatmsa.org

The MSA Partnership Ireland

MSA Ireland Partnership is a charity committed to supporting patients, raising awareness, and advancing research. Staffed entirely by volunteers, MSA Partnership Ireland aims to unite voices, minds and hearts, across all borders. to speak for those who cannot — with one mind, one heart, one voice to cure MSA.:

Email: info@msaireland.org

Defeat Multiple System Atrophy/ Vaincre L’Atrophie Multisystématisée (Canada)

Defeat MSA/Vaincre AMS Canada is a Canadian based charity that aspires to balance patient support, medical education, public awareness, promising research and community advocacy. We promise to work towards raising awareness within the medical profession and in society about Multiple System Atrophy and the everyday challenges faced by people living with it. We promise to help create a network of support for the MSA community and to foster a free and open dialogue that serves to advance research. We promise to conduct our activities with the highest of professional ethics, organizational integrity and financial transparency.

Email: info@msacanada.ca

Atrofia Multisistémica (Spain)

Atrofia Multisistémica España es una asociación fundada en 2024 por afectados de atrofia multisistémica con la intención de aunar esfuerzos para dar una mayor visibilidad y crear conciencia sobre esta enfermedad, así como servir de apoyo a las personas afectadas por la enfermedad y sus familiares, con el objetivo de mejorar su calidad de vida.

Email: info@amsespana.org

Defeat MSA New Zealand Trust

Defeat Multiple System Atrophy (MSA) New Zealand Trust is a registered charity serving the needs of those affected by Multiple System Atrophy in New Zealand. It aspires to balance patient support, medical education, public awareness, promising research and community advocacy.

Email: info@defeatmsa.org.nz

Landsforeningen Multipel System Atrofi (Denmark)

Landsforeningen MSA (MSA-Foreningen) arbejder for oplysning om og forskning i MSA samt støtte til MSA-patienter i Danmark.

MSA (Multipel System Atrofi) er en sjælden neurologisk sygdom, hvor celle-degeneration medfører problemer med bevægelsen, balancen og automatiske funktioner i kroppen.

Email: msa@msa-danmark.dk

National MSA Research Australia

National MSA Research Australia is committed to funding vital research into Multiple System Atrophy (MSA). The charity has a two fold mission: to raise funds for crucial research while also increasing public awareness of MSA. National MSA Research is a registered non-profit charity with the Australian Charities and Not-for-profits Commission (ACNC) and holds Deductible Gift Recipient (DGR) status, with the Australian Taxation Office (ATO).

Email: info@nationalmsaresearch.org.au

Atrofia Multisistémica (Spain)

Atrofia Multisistémica España es una asociación fundada en 2024 por afectados de atrofia multisistémica con la intención de aunar esfuerzos para dar una mayor visibilidad y crear conciencia sobre esta enfermedad, así como servir de apoyo a las personas afectadas por la enfermedad y sus familiares, con el objetivo de mejorar su calidad de vida.

Email: info@amsespana.org

Defeat MSA New Zealand Trust

Defeat Multiple System Atrophy (MSA) New Zealand Trust is a registered charity serving the needs of those affected by Multiple System Atrophy in New Zealand. It aspires to balance patient support, medical education, public awareness, promising research and community advocacy.

Email: info@defeatmsa.org.nz

Landsforeningen Multipel System Atrofi (Denmark)

Landsforeningen MSA (MSA-Foreningen) arbejder for oplysning om og forskning i MSA samt støtte til MSA-patienter i Danmark.

MSA (Multipel System Atrofi) er en sjælden neurologisk sygdom, hvor celle-degeneration medfører problemer med bevægelsen, balancen og automatiske funktioner i kroppen.

Email: msa@msa-danmark.dk

National MSA Research Australia

National MSA Research Australia is committed to funding vital research into Multiple System Atrophy (MSA). The charity has a two fold mission: to raise funds for crucial research while also increasing public awareness of MSA. National MSA Research is a registered non-profit charity with the Australian Charities and Not-for-profits Commission (ACNC) and holds Deductible Gift Recipient (DGR) status, with the Australian Taxation Office (ATO).

Email: info@nationalmsaresearch.org.au

Unis pour l'AMS (United for AMS, Quebec, CA)

Fonds philanthropique Valérie Garneau – Unis pour l’AMS is a private, donor-advised charitable fund established in Québec, Canada under the umbrella of the Fondation Québec Philanthrope. Created by Valérie Garneau following her diagnosis with Multiple System Atrophy (MSA), the fund is dedicated to advancing research. As a private philanthropic initiative, united with Defeat MSA/Vaincre AMS Canada, it enables targeted giving through community-driven fundraising in French Canadian regions of Canada. The fund stands as a lasting legacy, channeling personal commitment into meaningful impact for the MSA community.

Email: info@msacanada.ca

MOVE FOR MSA (USA)

"Move for MSA" is a global movement led by a recognized US non-profit of the same name, wherein people walk, run, cycle, swim or move in their own way to support research and families affected by Multiple System Atrophy. Every step helps fund research, support patients, and bring much needed hope to those living with MSA. Join people around the world walking, running, biking, even swimming or any kind of movement to raise awareness and funds for Multiple System Atrophy research!

"Together We Move, Together We Cure"

Email: info@moveformsa.org

The MSA Awareness Shoe (tm)

The sole mission of the MSA Awareness Shoe Campaign is to raise awareness about Multiple System Atrophy by its symbolic world marathon. The journey originally began as a prank among a group of friends who wanted to make people laugh. One of those people was Pearl Turner, who had Multiple System Atrophy. To date, the MSA Awareness Shoe has visited over a dozen countries across the world. As part of that mission, a team of dedicated individuals designed and built the world's first MSA Awareness Float, a super-sized MSA Shoe, made of steel rods, chicken wire and papier-mâché. To date, the Shoe Float has been appeared on top of bars, appeared in parades and been on display at an international arts festival.

Email: info@msashoe.org