Edith Huzar

Edith “Dee” Huzar known as a mother, a sister, a grandmother, a friend, was also a MSA warrior that battled this rare disease for 7 years. Dee’s motto was ‘keep moving and live your life’ which helped her stay strong through the progression of her disease. MSA never defined her, she showed dignity, grace & strength as she lived with MSA.

Edith spent her life being a “helper”. This could be seen through her role at Alexion Pharmaceuticals, through the various committees she served on in her parish, she was always inviting a friend or family member over for holidays if they had nowhere to go. Edith was always eager and willing to share what it felt like to live with MSA. She hosted an MSA awareness walk in her neighborhood in 2021 & 2022. She participated in a study with BIDMC-Boston to aid in early detection of MSA. She participated in a drug trial through BioHaven Pharmaceuticals in hopes to slow down the progression of MSA. Dee also starred in a video created by BioHaven to assist healthcare professionals know how MSA feels from a patient & their families perspective. She also shared her journey as a patient as a panelist in a medical symposium in which medical providers were able to ask her questions. Edith donated her brain for further research to PrecisionMed.

Since Edith’s diagnosis her goal has been to raise awareness of MSA and its side effects on its victims. Her fund will help other patients and their families help navigate through this rare disease. Please keep fighting for those who can not. Please keep praying for a cure so others do not have to endure what Edith has. Your donations in her name will help continue her legacy of helping others.